God is in Control

Yesterday......its a day to be remembered.  Not for how wonderful or special it was, but more for its fear and realities you just can't control.   It started at 7:37 am, bright and early.  Amelia kind of 'cried out' and I heard her move around a bit.  I waited to see if she would fall asleep again, but by 7:45, she cried a little more and I decided I would get up with her and let Patrick sleep.   I got her up and she would take a few steps and just kind of loose her balance an plop over.  Not totally abnormal, but she just didn't seem herself...she cried a little and we ended up sitting in the hallway between her room and the bathroom, her head in my lap and falling asleep.  I decided to put her in bed with Patrick - which is completely unlike me and us for that matter.  We don't really do the co-sleeping thing, but I just did it because at the time it just seemed right. 

30 min later, Patrick gets up with Amelia.  She continues to be soooo tired, she just lays on the floor whenever she can.   Why is she so tired?  Well, I guess lets put her in her own bed for a bit. 

30 min later, Patrick gets Amelia up from her bed because he was getting worried.  She is STILL soooo tired.  But now when ever we try to get her to stand, she collapses to the floor practically asleep.  You try and sit her up, she falls over.  Something is seriously wrong with this child.

What do we do?!  I didn't want to go to urgent care and sit for 3 hrs and have nothing accomplished with this lethargic baby girl.  Luckily, Minneapolis has wonderful pediatric hospitals, so we decided to go to Children's Hospital.  Trying to keep Amelia awake on the way down was quite a challenge, especially since we didn't know if she should sleep or not.  It was such a long ride.

We get to the emergency room and we go through the same basic story multiple times, for the doctor and nurses.  They have us do the sitting thing and standing thing and she once again, she collapses and falls to the side.  They agree, something is definitely wrong.  The nurse has to get an IV into Amelia's hand.  She was so brave and let them.  Multiple blood samples later, they do a 'quick blood sugar' test.  Her number is 52.  Its supposed to be 100.  So the initial diagnosis is low blood sugar.

The other blood tests are sent to the lab and we wait to see what they come back with.  Her blood sugar is lower than the quick one and comes back as 46.   As a scale - 60 is considered low.  Thankfully all the other tests came back normal.  So they give Amelia a glucose shot to get her blood sugar level to go up.  And they also decide to give her an IV because she was also dehydrated.  

Time really just didn't seem normal, it went incredibly fast and yet so insanely slow, so after a while....maybe an hour, they checked the blood sugar level again and it was up to 92 - much much better.

The IV drip was going for a good hour to hour an a half.   It sounded like the low blood sugar was the diagnosis.  The ER doctor needed to call the endocrinologist to make sure all was good.   She wanted more tests, which for our little pumpkin....meant more pokes and prods.   But once they were all done with those we were finally able to go home after 6 hours.

So what's next?  Well, its a 90% chance that Amelia has ketonic hypoglycemia.  If this is the case, we need to give Amelia a complex carbohydrate snack before bed.  The reason for the drop in blood sugar is due to the long fast (aka sleeping).  We also have to take her blood sugar level each morning...more pokes - bummer.  This morning it was 84, so that was I think pretty good.  The ER doc said that typically these episodes don't usually happen repeatedly, so hopefully that is the case for our girl.
But, we still have results that need to come back.  So next Wednesday, we have a follow-up with the endocrinologist to get test results back and provide Amelia's blood sugar.

Out of control is pretty much a nutshell of how I feel.  But God is.  He is bigger than me, than Patrick and Amelia.  So prayers will be my method in this situation.  Thank you to everyone who has been so supportive and lifting up Amelia in your prayers.  We will continue to keep you up to date with Amelia's happenings.   Amelia was her normal self today, which we are so incredibly grateful.